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Tag Archives: spinal muscular atrophy

Estelle and the world’s most expensive drug

Estelle and the world’s most expensive drug
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By Amelia Tarallo Hometown Weekly Staff Estelle Lemieux and her parents have lived in Walpole since moving from Florida two years ago. In the living room of their house are a couple of balloons from her second birthday, just a few days ago. Like many two-year-olds, Estelle loves Paw Patrol, her favorite characters being...
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Annual Cure SMA Yard Sale braves the rain

Annual Cure SMA Yard Sale braves the rain
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By Katrina Margolis Hometown Weekly Reporter Medfield is one of the most incredible communities in the area, and no one will tell you that more than Heidi Johnson. Heidi’s son, William, has Spinal Muscular Atrophy (SMA), and Heidi has been working since he was two years old to help raise money towards Cure SMA, a...
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Medfield’s Johnsons receive new hope

Medfield’s Johnsons receive new hope
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By Katrina Margolis Hometown Weekly Reporter William Johnson is a junior at Medfield High School. He’s working hard to get through his classes, tackling such beasts as AP US History, while at the same time working with the basketball team, playing soccer, and applying to and checking out colleges. His mother will tell you that...
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